Distributed Systems for Secure Storage and Retrieval of Encrypted Biological Specimen Data

Abstract

The subject matter disclosed herein includes distributed systems for secure storage and retrieval of encrypted biological specimen data. According to one embodiment, the system may include a submission device client operable to send, to a patient record server device, a patient record; and receive, from the patient record server device, a confirmation of receipt of the patient record. The system may further comprise a patient record server device comprising a first processor and second memory, a second communications interface associated with the first processor and second memory and operable to receive, from the submission device client, the patient record; send, to the submission device client, the confirmation of receipt of the patient record; receive, from a member device client, patient profile information; determine search results based on the patient profile information; and send, to the member device client, information indicating the search results. They system may yet further comprise a member device client operable to send, to the patient record server device, the patient profile information; receive, from the patient record server device, the information indicating the search results based on the patient profile information; and receive the search results based on the information indicating the search results.

1 . A system for secure storage and retrieval of encrypted biological specimen data comprising:
 a processor; and   a nonvolatile memory communicatively coupled to the processor, the nonvolatile memory comprising computer-readable instructions that, when executed by the processor, cause the processor to perform a method comprising:
 creating a patient blockchain that is empty at a start of a clinical trial, the patient blockchain corresponding to a patient for the clinical trial; 
 updating the patient blockchain during the clinical trial; 
 broadcasting availability of a physical specimen sample and of the patient blockchain as updated during the clinical trial to network members at a conclusion of the clinical trial; 
 receiving a permission for a transfer of the physical specimen sample to a third party; and 
 updating the patient blockchain with a record of third party access to the physical specimen sample and of the permission for the transfer of the physical specimen sample. 
   
     
     
         2 . The system of  claim 1 , wherein the method further comprises at least one of:
 storing a patient record provider credit to update the patient blockchain;   storing a member device client debit to update the patient blockchain; or   storing an operator credit to update the patient blockchain.   
     
     
         3 . The system of  claim 1 , wherein the method further comprises:
 receiving patient record information from a member device client;   storing the patient record information to update the patient blockchain; and   updating a stored access fee associated with the patient blockchain in response to storing the patient record information.   
     
     
         4 . The system of  claim 1 , wherein the method further comprises storing the patient blockchain in a secure peer-to-peer network of computers. 
     
     
         5 . The system of  claim 1 , wherein the method further comprises storing the patient blockchain in an individual wallet or biobank associated with the patient. 
     
     
         6 . The system of  claim 1 , wherein the patient blockchain is configured so that at least one block can include data associated with multiple transactions. 
     
     
         7 . The system of  claim 1 , wherein the patient blockchain comprises, at least at the conclusion of the clinical trial, a specimen identifier, informed consent data, a medical record, and results. 
     
     
         8 . A method comprising:
 creating a patient blockchain that is empty at a start of a clinical trial, the patient blockchain corresponding to a patient for the clinical trial;   updating the patient blockchain during the clinical trial;   broadcasting availability of a physical specimen sample and of the patient blockchain as updated during the clinical trial to network members at a conclusion of the clinical trial;   receiving a permission for a transfer of the physical specimen sample to a third party; and   updating the patient blockchain with a record of third party access to the physical specimen sample and of the permission for the transfer of the physical specimen sample.   
     
     
         9 . The method of  claim 8  further comprising:
 storing a patient record provider credit to update the patient blockchain; 
 confirming the patient record provider credit to a member device client; 
 storing a member device client debit to update the patient blockchain; 
 confirming the member device client debit to the member device client; and 
 storing an operator credit to update the patient blockchain. 
 
     
     
         10 . The method of  claim 8  further comprising:
 receiving patient record information from a member device client; 
 storing the patient record information to update the patient blockchain; and 
 updating a stored access fee associated with the patient blockchain in response to storing the patient record information. 
 
     
     
         11 . The method of  claim 8  further comprising storing the patient blockchain in a secure peer-to-peer network of computers. 
     
     
         12 . The method of  claim 8  further comprising storing the patient blockchain in an individual wallet or biobank associated with the patient. 
     
     
         13 . The method of  claim 8 , wherein at least one block of the patient blockchain comprises data associated with multiple transactions. 
     
     
         14 . The method of  claim 8 , wherein the patient blockchain comprises, at least at the conclusion of the clinical trial, a specimen identifier, informed consent data, a medical record, and results. 
     
     
         15 . A nonvolatile memory comprising computer-readable instructions that, when executed by a processor, cause the processor to:
 create a patient blockchain that is empty at a start of a clinical trial, the patient blockchain corresponding to a patient for the clinical trial;   update the patient blockchain during the clinical trial;   broadcast availability of a physical specimen sample and of the patient blockchain as updated during the clinical trial to network members at a conclusion of the clinical trial;   receive a permission for a transfer of the physical specimen sample to a third party; and   update the patient blockchain with a record of third party access to the physical specimen sample and of the permission for the transfer of the physical specimen sample.   
     
     
         16 . The nonvolatile memory of  claim 15 , wherein the computer-readable instructions further cause the processor to:
 store a patient record provider credit to update the patient blockchain;   store a member device client debit to update the patient blockchain; and   store an operator credit to update the patient blockchain.   
     
     
         17 . The nonvolatile memory of  claim 15 , wherein the computer-readable instructions further cause the processor to:
 receive patient record information from a member device client;   store the patient record information to update the patient blockchain; and   update a stored access fee associated with the patient blockchain in response to storing the patient record information.   
     
     
         18 . The nonvolatile memory of  claim 15 , wherein the computer-readable instructions further cause the processor to store the patient blockchain in a secure peer-to-peer network of computers. 
     
     
         19 . The nonvolatile memory of  claim 18 , wherein the computer-readable instructions further cause the processor to store the patient blockchain in an individual wallet or biobank associated with the patient. 
     
     
         20 . The nonvolatile memory of  claim 15 , wherein at least one block of the patient blockchain comprises data associated with multiple transactions.